Today and what that means

Today we had Chloe's MRI. Fortunately we got the results back fairly quickly (because Dr. Mozer ROCKS). Her MRI was completely normal!!!! Why the techs acted so oddly I have no idea but it's cool. What does a normal MRI mean in relation to the Angelman situation? Nothing. It doesn't mean that she doesn't have it, but it does mean that she doesn't have something wrong in addition to. If that makes sense. It means that she has a normal looking brain. That's about it, from what I understand. So here is the tentative time line and where we are at so far.
This Saturday we have the EEG. If she has Angelman's then the EEG will show (this is taken from a 2003 Medical Journal): Tomorrow morning (4/6) I will call the geneticist again and hopefully his nurse will have more answers on whether or not our insurance will pay for the Angelman test. If they do pay then we will go to Quest to have her blood drawn ASAP. If they do not pay then I will make more calls to get a price on the test and then we will figure out how to pay for it out of pocket. One way or another we will get the test done. Once we have the blood drawn then the 4-6 week wait clock begins. From there two scenarios will happen A.) The test comes back negative and we talk with the geneticist again and we get her tested for the next thing on the docs list and we will continue with her therapies as normal.... OR B.)It's positive, in which case we do everything we are doing now with the exception of a few things, we will step up the various therapies, we will get her on disability and we will start the process of laying the foundation for her care and well being for the rest of her life. We will start learning sign language and the million other things that she needs us to be one step ahead of her.

The pattern most frequently observed both in children and in adults has prolonged runs of high amplitude

rhythmic 2–3 Hz activity predominantly over the frontal regions with superimposed interictal epileptiform discharges. High amplitude

rhythmic 4–6 Hz activity, prominent in the occipital regions, with spikes, which can be facilitated by eye closure, is often seen in children under the age of 12 years.

Also a slightly new development, her shaking isn't getting better, even though we have been trying to keep her blood sugar level, so today I bought a glucose monitor to see what is going on. Please pray for me. the thought of sticking Chloe and blood kinda makes me nauseous. So please pray that I can do it correctly and I don't faint. yes ok, I get kinda light headed around blood. it's a thing. Anyways we are hoping that by monitoring her blood sugar level it will give us more insight into her shaking. 

I hope this answers some of the questions and helps with anyone wondering whats up.